About Duchenne and Jett Foundation
Duchenne is the #1 most common fatal genetic disorder diagnosed in childhood. It is a very progressive muscle wasting disease primarily affecting boys. Most boys are wheelchair dependent by age 12 and rapidly lose all muscle function. The respiratory system is affected and the heart, a muscle too, eventually fails. Most boys with Duchenne do not live beyond their 20's. There is no cure or treatment to alter the course of this disease. It affects 1 in 3500 boys; about 20,000 boys in the US alone are effected. On a positive note, this is the most exciting time ever for Duchenne research as there are very promising treatments on the horizon. This is a critical time to support this research and push it to successful drug development and FDA approvals.
Calvin’s parents, Cindy and Curt Quitzau, have found tremendous support by working with the Jett Foundation and Christine McSherry who, after her son Jett was diagnosed, started the foundation dedicated to fighting this devastating disease. In 2008, The Jett Foundation, in collaboration with the Massachusetts General Hospital in Boston, opened a new multidisciplinary coordinated care clinic dedicated to helping boys with DMD. This clinic is the first of its kind in New England.
In 2011, with tremendous national and international impact, the Jett Foundation initiated the collaboration of several Duchenne specific organizations to form The Duchenne Alliance. This unique group of organizations has created the first ever Duchenne Dashboard which shares knowledge, leverages resources, and streamlines business practices to help fund and fuel Duchenne research forward faster.
Learn more about the Jett Foundation For Duchenne Muscular Dystrophy.